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The OI Foundation offers several resources for connecting with individuals with OI and OI families. All of the resources listed below allow participants to ask questions, share information, and offer mutual support to others.

OI Foundation Official Facebook Page
"Like" the OI Foundation on Facebook to receive important announcements and updates from the OI Foundation.

OIF Forum Facebook Page
Join the OIF's Forum discussion page for the OI community. Please note: In order to view and participate in  Facebook groups, you will need an active Facebook account. 

Additional Resources for OI-Related Online Support
For questions or concerns about any support resource, please contact bonelink@oif.org. 

 

OI FOUNDATION SUPPORT GROUPS
Support Group Leaders listed on this page represent community based groups of people affected by OI. These get-togethers are first and foremost a social gathering. Speakers may be scheduled from time to time to provide information on topics of interest to the group. Some groups choose to organize local fundraisers and raise awareness about OI in their communities.

Local contacts are not responsible for holding meetings but are available to offer support, answer questions and direct you to resources.

The information on this page is intended to help you connect with the OI community in your area. Please email or call a support group leader or contact person to join a group or to learn about local resources and activities.

Meetings are listed on the Online Calendar.

If you are interested in starting a Support Group in your area, contact the OI Foundation or visit the Start a New Local Support Group page.

State/Area

Name (Email link)

Phone

Alabama

Shellie Gruenwald - contact

Dana Busby - support group leader

(850) 496-2626

(334) 216-2259

Arizona

Barbara Hicks - support group leader 

Lauri Alexander - contact

 

 

Northern California


Bill Scarberry - support group leader
Anastasia Scarberry - support group leader
Beth Gero - support group leader

(916) 955-0978
(916) 474-9073

(925) 516-6439

Southern California

Michelle Hofhine - support group leader

(805) 484-8723

Connecticut

Sharon Werner - support group leader

(860) 647-8095

Colorado

Christina Carney- support group leader

(970) 964-4250

Florida- Tampa

Susie Wilson - support group leader
Gail Bunker - support group leader
Shellie Gruenwald - contact

(239) 482-6892
(813) 657-0049
(850) 969-0006

Florida-Southern

Missy Monokian - support group leader

(305) 528-2336

Florida-
Broward and Palm Beach County

Michele Burka - support group leader

Amie Ludwig - contact

(954) 721-2879

(214) 334-9683

Georgia

Anne Smith - support group leader
Lindsey van der Klei - support group leader

Sharon Mutnick
 - contact 
Aimee Strickland - contact

 

 


(770) 715-3051
(770) 296-9391

Idaho


Trisha Taylor - support group leader

(208) 969-0791

Illinois

Jean Grys - contact

Mary Rozema - contact

(309) 353-4988

(815) 463-0687

Indiana

Michelle Hoppes - contact

(765) 553-6600
(765) 278-1840 

Iowa

Joan Jacobs - support group leader
Sara Moffett - contact
 
Robin and Jerome Hawco -support group leader

(641) 777-7055
(641) 903-6393

Kentucky

Cheryl Pena  - support group leader

Angie Skaggs - support group leader   

(859) 744-3679

(270) 860-7746

Kansas

Susie Gibson - contact

Stephanie Guin - support group leader

(816) 650-6344

(913) 486-9080

Massachusetts-South Shore

Cheryl Manduca - support group leader

(508) 292-0562

Michigan 

Mark Peck

Kim Peck

(517) 256-1193

 (517) 881-3240

Minnesota

Erin DeBlieck - support group leader

(507) 931-3454

Missouri

Susan Wright - contact

Jennifer Fischer - contact


Stephanie Guin-support group leader

(636) 931-5607

(417) 845-8105
(417) 592-3117(cell)

(913) 541-4770

Montana

Karrie Levanen - support group leader

(406) 257-9001

New Jersey

Ricky Britner Jr. - support group leader

JoAnn Berkenbush - contact

(304) 261-9199

New Mexico

Curtiss Wilson - support group leader

(505) 750-8207

New York
New York-Long Island

Brett Eisenberg - contact

Paul Granger - support group leader 

(347) 433-3342

(516) 796-0457

North Carolina

Ray Rogers - support group leader

Naveen KV Muralidharan

(910) 392-7778

(919) 534-5078

Ohio

Renee Riegel - contact
Cyndi Ashland - support group leader
Rena Sorensen-Burnworth - support group leader

(937) 830-2020
(513) 467-9588
(513) 673-3878

Ohio (Northern)

Les & Erin Szavuly - contact

(419) 824-3685

Ohio (SE)

Cassandra Gililland - support group leader

(304) 840-9660

Oregon

Shannon Parker-support group leader

Julie Schlafle
 - contact

(503) 881-6240

(503) 285-2283

PA (Pittsburgh)

Chaz Kellem - support group leader

Nikki Watson - support group leader

(412) 913-6357

Rhode Island

Sue Kortick-support group leader

(401) 444-5794

Texas (Central)


Texas (Wise County)

Texas (Houston)

Debbie Wiederhold - support group leader

Courtney Arant - support group leader

Lauren Miller - support group leader
Jocelyn Gomez - support group leader

(512) 255-4422



(713) 562-5227

Texas (Dallas)

Molly Lyke - contact

Elise Russell - contact

(214) 520-3023

(817) 577-0056

Utah

Angie Livingston - contact

(801) 536-3649

Virginia - Tidewater 

John Crandley - support group leader

(757) 477-6023

Washington

Diane Wysocki - support group leader

(206) 713-7208

West Virginia

Wendy Barb - support group leader

 

Wisconsin

Jennifer Reese - contact
Kathy Shine - contact
Daniel Shine - contact

(262) 646-3887
(414) 383-4777
(414) 383-4777

Updated July 2017

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