OIF part of team receiving $6.25 million NIH research grant

Baylor College of Medicine has been selected by the National Institutes of Health to lead the Brittle Bone Disorders Rare Disease Clinical Research Consortium, a new, multi –center initiative that will focus on understanding and providing better treatment options for rare diseases characterized by bone fragility and fractures. The consortium will team up with the OIF to train a broad spectrum of health care providers in the diagnosis and treatment of OI. Click the link below to read the full press release and stay tuned to E-news and Breakthrough for more details about this groundbreaking collaboration.

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OIF Sweepstakes!


Prizes include: a 7-Inch Dual Screen Portable DVD Player, valued at $200; a 42” LED TV with HDMI cable, valued at $400; and a trip for four to the 2016 OIF National Conference complete with four full conference registrations and a room at the Walt Disney World Swan & Dolphin for three nights, valued at $1200.  Act soon because entries received before December 8th will be eligible for the early bird prize of a $200 gift card to Amazon!  The suggested donation is $5 per entry ticket, but there is no purchase necessary to win.  Good luck!


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Cross-Sectional Multicenter Study of OI 

This is the first major article to come out of the OIF’s Linked Clinical Research Centers project. It reports on basic information arising from the initial stage of the Natural History Study. A natural history study like this gathers information about the health of people who have OI. The study involved people across the entire life span who represented the different degrees of severity - mild, moderate and severe. Based on this data, the article describes some of the long term skeletal and non-skeletal effects of OI. This information helps to identify and prioritize the next set of research questions, identify potential areas for improving treatment and expands understanding about how OI changes across the life span.

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2016 OI Foundation National Conference

The next OI Foundation National Conference will be held
July 22-24, 2016 at Walt Disney World's Swan and Dolphin Hotel in Orlando, FL!

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