Important New Research Opportunity: BBDC Contact Registry

The Brittle Bone Disorders Consortium Contact Registry is OPEN and accepting enrollment!! This registry is part of the new $6.25 million research project funded by the NIH and we need individuals with OI and parents to enroll so that researchers can learn as much about OI as possible! Once you are enrolled, you will begin to receive  information on upcoming studies and surveys about OI. This registry is different than the LCRC natural history study and the KKI/OIF Registry. To learn more and to enroll, please click the link below.

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It's time to Join or Renew your OIF Membership


We count on the support of our members to help fund research, provide information and support, develop new resources, expand support groups and increase public and professional awareness about osteogenesis imperfecta.

 Become a friend and member of the OIF for only $3.00 per month – that’s just 10 cents per day!


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Help support OIF Programs and Research today!


Read the attached letter (click "Learn More" below) from OIF Board President, Mark Birdwhistell about the OI Foundation’s new and exciting research program and clinical research sites. Please consider helping us move forward with OI related research and programs by making a gift today.



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2016 OI Foundation National Conference

The next OI Foundation National Conference will be held
July 22-24, 2016 at Walt Disney World's Swan and Dolphin Hotel in Orlando, FL!

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