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The OI Foundation has a number of information and support services designed specifically for physicians and other medical professionals, including referral services. If you can't find the information you're looking for here, please contact Mary Beth Huber, our Information & Resources Director, for immediate assistance at (800) 981-2663 or by writing to bonelink@oif.org.
OI Foundation Physician List
The OI Foundation maintains a list of physicians who have identified themselves as knowledgeable about OI and who have expressed an interest in treating patients who have OI.
If you are a physician-- or if you know of a physician-- who might be interested in being included in the Physician information list, please contact us at bonelink@oif.org
OI Foundation Annual Clinic Directory
The OI Foundation conducts a survey each spring with clinics and medical care facilities that have identified themselves as treating patients with OI. The results are printed in a clinic directory by state (which includes contact information and clinic hours) and an easy-to-use comparision chart that lists the clinics and the services they offer.
The clinic list is updated as needed throughout the year, the comparison chart is updated once annually, each Fall.
If your clinic treats patients with OI-- or if you know of a clinic that might be interested in being included in the survey-- please contact us at bonelink@oif.org.
Fact Sheets & Other Resources
Many of our most popular resources are available on line on our Fact Sheets page or by order through our on-line store. If you can't find the answer(s) your looking for, please contact the OI Foundation. We will respond to most queries immediately during business hours, all queries receive a confidential, individual response within three business days.
New Resource for the OI Community!
The Shriner's Hospital in Montreal, Quebec, has published a brand-new resource for the OI community. The book draws on the experience of the inter-disciplinary treatment team involved with the care of children and young adults with OI at the Shriner's Hospital for Children (Canada). It provides a guide to diagnosis, medical, surgical and nursing rehabilitative care, and psycho-social issues. Copies of the book will be available for purchase at the OI Foundation National Conference, or you can download an order form and purchase the resource by mail. (You may need to download the free adobe acrobat reader to view the file.)
Learn the Latest Research Information
Read the report from the 2006 "New Research Strategies in OI" scientific meeting, where more than 50 clinicians and researchers gathered to discuss the current status and future course of clinical care and research into treatments and a cure. This was the fifth OI Foundation Scientific Meeting. Sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases, the Office of Rare Diseases, and the Buchbinder Family.
Read a summary from the 2005 International Science Meeting on OI.
Read the report from the "New Research Strategies in OI" scientific meeting, where more than 30 clinicians and researchers gathered to discuss the current status and future course of OI research into treatments and a cure.
Read the summary of the Type I scientific meeting.
Read the latest Research Update printed in Breakthrough, our quartlery newsletter.
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An Introduction to OI for Medical Professionals, Individuals, and Families
This 12-page pamphlet includes basic information about the disorder, including characteristics, diagnosis, common myths, inheritance factors, basic treatment strategies, and precautions for medical professionals caring for patients with OI. You can Download the pamphlet now, or order copies through the online store.
OI: A Guide for Nurses
This 64-page book is intended for medical professionals, or for families to use as a resource while working with medical professionals. Thanks to a grant from the American Legion Child Welfare Foundation, 10,000 copies were distributed free of charge to nurses and nurse educators throughout the country. Now that the initial distribution is complete, additional copies are available from the Foundation or online through the OI foundation store. A .pdf version of the book is also available for download. (This is a large file that may take some time to load in your browser and/or download, depending on your connection speed. It will open in a new window; please be patient.)
Therapeutic Strategies for OI; A guide for occupational and physical therapists
This 14-page photo-illustrated booklet is intended for medical professionals, or for families to use as a resource while working with a medical professional. Edited by Ellen Painter Dollar, the book is compiled from information provided by PTs, OTs, and physicians familiar with OI. Sections include basic information about the disorder, the role of physical and occupational therapy in managing OI, safe handling of children and adults with OI, and specific strategies for safe, successful therapy for patients with OI. A free copy can be downloaded and printed in a .pdf format. (This is a large file that may take some time to load in your browser and/or download, depending on your connection speed. It will open in a new window; please be patient.) You can also order printed copies through our on-line store. Be sure to check out the rest of our resources while you're there!
Bibliographies
The Osteogenesis Imperfecta Foundation is a partner within the National Institutes of Health Osteoporosis and Related Bone Diseases~National Resource Center (NIH ORBD~NRC). The NIH ORBD~NRC maintains information for medical professionals on its web site, including a bibliography on osteogenesis imperfecta.
Selected bibliographies of published works by the OI Foundation's Medical Advisory Council are available online, or click here for a complete Annotated OI Bibliography, published with support from the National Institutes of Health's Osteoporosis and Related Bone Diseases ~ National Resource Center. (This is an adobe acrobat file).
Additional Grant & Research Information
Please visit our Research Professionals page.
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