ABLE Act

Congress passed the most significant piece of legislation for Americans living with disabilities since the Americans with Disabilities Act of 1990.  The Achieving a Better Life Experience (ABLE) Act allows people with disabilities to save money in special bank accounts without jeopardizing their government benefits.  The money saved can be used for education, health care, transportation, housing and other essential expenses. This measure passed with overwhelming support from both Democrats and Republicans.  The Osteogenesis Imperfecta Foundation has been honored to stand with so many other advocacy organizations supporting the ABLE Act and we believe this new law presents an important opportunity for the OI community.

 

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End of Year Giving


We are so fortunate at the OI Foundation to have the continued support of the OI community. Because of your generosity, the OI Foundation is able to continue to fund important research, programs and services for families and individuals living with osteogenesis imperfecta. We recently sent out our End of Year Giving letter to our supporters. We hope you will take a moment to consider giving a gift to the OI Foundation so that we can continue providing a high level of service to the OI community. Thank you!.


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OIF part of team receiving $6.25 million NIH research grant

Baylor College of Medicine has been selected by the National Institutes of Health to lead the Brittle Bone Disorders Rare Disease Clinical Research Consortium, a new, multi –center initiative that will focus on understanding and providing better treatment options for rare diseases characterized by bone fragility and fractures. The consortium will team up with the OIF to train a broad spectrum of health care providers in the diagnosis and treatment of OI. Click the link below to read the full press release of this groundbreaking collaboration.

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2016 OI Foundation National Conference

The next OI Foundation National Conference will be held
July 22-24, 2016 at Walt Disney World's Swan and Dolphin Hotel in Orlando, FL!

Watch the OI Foundation’s PSA

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