Managing Your Health

One of the challenges everyone faces is keeping track of health information. This is particularly important for young adults who have OI. Getting ready to go to college, living independently in a new city, and traveling are all occasions when it is critically important to know one’s general and OI history. Often parents know their child’s health history in great detail, but the young adult is not as well informed. 

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OI Foundation Launches Campaign to Raise $10 Million

The Osteogenesis Imperfecta Foundation publicly launched its 50,000 Lives, One Unbreakable Spirit® Campaign at Shriners Hospitals for Children -Chicago, on Wednesday April 10, 2013.  The campaign is a national effort to raise $10 million in four years to fund groundbreaking OI research and to expand valuable programs and services for people living with OI, their loved ones, and the healthcare professionals who care for them. 

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A Clinical Study of Heart Disease in Children and Adults who have OI

A research study of heart problems in people who have OI is currently recruiting child and adult participants. This trial is being conducted by the Osteogenesis Imperfecta Program at the Kennedy Krieger Institute, Baltimore, MD. For details about the study and a description of who is eligible, please click the link below.

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