Chief Executive Officer
Tracy Smith Hart email@example.com
Responsible for: strategic oversight of the national offices' operations, budget and planning; coordination of advocacy efforts; liaison with related organizations; and liaison with Board of Directors.
Director of Finance & Administration
Tom Costanzo firstname.lastname@example.org
Responsible for: financial planning; budget oversight; financial statements; accounts payable & accounts receivable; day-to-day operations of Foundation offices; computer services and support.
Director of Program Services
Mary Beth Huber email@example.com
Responsible for: coordination, development and distribution of all educational and informational materials about OI; management of reference and resource materials; development of national conference program and CME sessions; oversight/management of response to individual queries about OI.
Director of Communications & Development
Erika Ruebensaal Carter firstname.lastname@example.org
Responsible for: managing special projects, corporate sponsorships and donor relations, media queries and events, website and social media, electronic and print communications; coordinating and execution of National Conference on OI and annual Scientific Meeting.
Melissa Bonardi email@example.com
Responsible for: coordination and support to fund raising and campaigns by membership and community; support of member-driven fund raising efforts and assist in board-driven fund raising efforts.
Danielle Cymber firstname.lastname@example.org
Responsible for: coordination and support to fund raising and campaigns by membership and community including Blue Jeans for Better Bones program, Bone China Tea and National OI Awareness Week.
Petra Harvey email@example.com
Responsible for: Preparation and distribution of education materials that reflect the many needs of people living with OI. Provide OI program information to constituents and the general public. Maintain databases, mailings lists, telephone networks and other information to facilitate the functioning of the health education program.
Desiree Swain firstname.lastname@example.org
Responsible for: membership services and member database management; processing of donations and related correspondence; maintenance of memorial/honorarium listings; fulfillment of web store orders.
Jenny Moore email@example.com
Responsible for: clerical, administrative and reception support for all OI Foundation staff. Key responsibilities include: answering phones; order fulfillment; office volunteer supervision; office equipment and supply maintenance.
For general questions or comments related to OI or the OI Foundation, write to:
For questions or comments related specifically to this web site, write to: