National Osteogenesis Imperfecta Awareness Week, originated from and is scheduled around Wishbone Day (an international OI Awareness Day on May 6th). During Awareness Week, we encourage the OI community, Foundation, and supporters to use fundraising events, social media, and individual state proclamations to raise awareness for osteogenesis imperfecta.
proclaimed OI Awareness Week in over 10 cities and states, as well as held
multiple events nationwide. The OI community celebrated the international OI
Awareness Day, Wishbone Day, on Friday, May 6, 2016 by wearing yellow to raise
awareness. The OIF celebrated Wishbone Day by sharing facts and information via
social media every hour for a consecutive twelve hours.
THE OI CONTACT REGISTRY
part of the OIF’s awareness and education goals includes expanding the
knowledge about OI among medical professionals and researchers. Help the Rare
Diseases Clinical Research Network accelerate research in the field of OI by
joining the RDCRN Contact Registry. Joining this registry is your opportunity
to participate in the next wave of important discoveries about OI.
Joining the Contact
Registry is quick and easy! Sign up online at www.rarediseasesnetwork.org/cms/bbd/Get-Involved/ContactRegistry
Order OI Awareness Wristbands from the OIF Online Store!
Stay in the loop! For more information about National
OI Awareness Week and the OIF, “Like” the OI Foundation Facebook
page and follow @OIFoundation