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For 40 years, the OI Foundation has helped people find the answers, doctors, and care they need during critical times in their lives. Please donate today to our 40th Anniversary campaign so that we can continue to make a difference for families like Dan and Heidi, whose story is below.

Heidi lives with a relatively mild form of OI. Very much in love, Dan and Heidi decided to expand their family a little more than five years ago. Yet, two weeks prior to the scheduled C-section to deliver their son Isaac, Heidi could no longer walk due to unbearable hip pain. Exhausted and desperate, Dan found the Osteogenesis Imperfecta (OI) Foundation’s website while frantically searching for a doctor who could diagnose the cause of Heidi’s pain.

The staff at the OI Foundation put her in touch with a nearby clinic with doctors experienced in treating people with OI. The doctor at the clinic subsequently diagnosed transient osteoporosis and immediately began treatment. Heidi was in a wheelchair for over four months, but she then was able to get back on her feet.

When you make a gift to the OI Foundation, you support this type of transformation in the lives of children and adults! The OI Foundation’s National Information Center is the only program dedicated to helping people understand and cope with this rare disorder. Information provided by the center is reliable and medically verified, and personal support is provided to individuals in a timely manner.




Isaac and his parents - Halloween

Isaac with his light sabers

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40th Anniversary campaign





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11 percent of goal achieved.

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