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OIF Podcast Series

Leaders in the OI Field on New Advances in Research and Treatment

The OIF’s monthly podcast series, Leaders in the OI Field on New Advances in Research and Treatment, is a part of the OI Foundation's campaign to increase outreach and educate medical professionals who treat individuals with osteogenesis imperfecta.


 

Dr. Brendan Lee, M.D., Ph.D., of Baylor College of Medicine, discussing Clinical Research in the area of OI.

 

 

  

 

Dr. Laura Tosi, orthopedic surgeon at Children’s National Medical Center in Washington, DC, joined OIF Health Educator Petra Harvey to discuss Gaps in Care and Information in Treating Adults with OI. 


 

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Dr. David Vernick is associated with Harvard Medical School in Boston; he is a Surgeon in Otolaryngology at Massachusetts Eye and Ear Infirmary, Beth Israel Deaconess Medical Center, Brigham and Women's Hospital, and Children's Hospital in Boston, MA.  Dr. Vernick is also a member of our Medical Advisory Council. Dr. Vernick discusses Hearing Loss in Patients with Osteogenesis Imperfecta.

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Dr. Eric Rush, M.D. of University of Nebraska Medical Center, discusses Identifying New OI Genes and what they mean to Understanding OI

 

 

Kruse podcast

Dr. Richard Kruse, Vice Chair Department of Orthopedics, Chief of the Orthopedic Trauma Service, and Co-Director for the multidisciplinary OI program at Nemours/Alfred I. duPont Hospital for Children in Wilmington, DE, joined OIF CEO Tracy Hart to discuss Surgical Updates on Treating Children with OI.

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Dr. Sandesh Nagamani of Baylor College of Medicine, is Director of Clinical Research, Molecular and Human Genetics, Director of Clinic for Metabolic and Genetic Disorders of Bone, Director of Clinical Translational Core for the NIH IDDRC at BCM, Co-PI of NIH RDCRN Urea Cycle Disorders Consortium. Dr. Nagamani discusses Linked Clinical Research Centers and their Effect on the Rare Bone Disease Research Community

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Dr. Cathleen Raggio, Co-Director of the Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias at Hospital for Special Surgery, discusses Multidisciplinary Care for the Pediatric Patient with OI.

 

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Dr. Deborah Krakow, Professor of Human Genetics and OB/GYN at David Geffen School of Medicine at UCLA and Co-Director of the International Skeletal Dysplasia Registry, joined OIF CEO Tracy Hart to discuss Pregnancy in Women with OI.

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Dr. Michelle Fynan, Licensed Mental Health Counselor, Board Certified Clinical Sexologist, and Associate Course Director in Social Science Department at Full Sail University in Winter Park, FL discusses the Importance of Treating the “Whole” Person with OI.

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Sandhaus Podcast Slide

Dr. Robert A. Sandhaus of National Jewish Health serves as the Clinical Director at the Alpha-1 Foundation in Denver, CO and the Medical Director and Executive Vice President of AlphaNet. Dr.Sandhaus joined OIF CEO Tracy Hart on the most recent OIF Podcast Episode, Pulmonary Issues and OI.

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Jean-Marc Retrouvey, D.M.D. MSc, FRCD of McGill University discusses Craniofacial and Dental Issues in OI

 

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Cory Nourie MSS, MSLP, Patient Transition Social Work Coordinator at Nemours Ai duPont Hospital for Children discusses Transitioning; Taking Charge of your Health as a Young Adult

 

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Dr. Brendan Lee, M.D., Ph.D., of Baylor College of Medicine, returns for an Update on the Brittle Bone Disorders Consortium


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