Additional Resources for Online OI Support 

OI-Related Facebook Pages 

The OI Foundation encourages members of any OI-related forum on Facebook to promote mutual support and healthy discussion, voicing their opinions in thoughtful and respectful ways. The pages listed below are a service for members of the OI Community who want options to connect with others online.  These pages listed are managed by volunteers outside of the OIF staff and are NOT endorsed or sanctioned by the OI Foundation.  Individuals may find different groups to be more informative or supportive to their particular needs. The OIF does not encourage sharing private or sensitive medical information on any social media page.  

Please note: In order to view and participate in the Facebook groups and forums, you will need an active Facebook account.   

 

ANOI - Amigos Nacional da Osteogenesis Imperfecta

Expecting OI Parents (EOIP)

Indiana OI Families

Mamas of Babies with OI

Montreal Shriners OI Clinic Group

O.I Group for Families and Therapists

O.I. Wish You Well

OI (Osteogenesis Imperfecta) Group for (Louisiana) and surrounding areas

OI (Osteogenesis Imperfecta) in California

OI (Osteogenesis Imperfecta) in Virginia

OI Can And OI Will

OI Can Write A Poem

OI Chat

OI Chronic Pain Support Group

OI Crocheters And Crafters

OI Dads

OI Dupont

OI Families in DFW

OI Girls

OI Have An Idea

OI in Michigan

OI Market Place

OI Medical Supplies

O.I’m Strong

OI Parenting!

OI Parents

OI Parents at 2014 OI Conference

OI Parents at CCK

OI Parents Homeschool

OI sex

OI Support Africa

OI Support Group -Broward County & Palm Beach County

OI Support Group of Wise County, Texas

OI Support in Arabic

OI WORLD

OIFE - OI & adult health

Omaha OI Parents Clinic And Surgery Group

Osteogenesis Imperfecta

Osteogenesis Imperfecta (OI) Networking & Support Group, Michigan

Osteogenesis Imperfecta Awareness

Osteogenesis Imperfecta Canada

Osteogenesis imperfecta en español

Osteogenesis Imperfecta for teens and young adults

Osteogenesis Imperfecta Men’s Group

Osteogenesis Imperfecta Research

Osteogenesis Imperfecta Type 1/Mild Form

Osteogenesis Imperfecta. "We have Unbreakable Spirits!"

Osteogenesis Women's Forum

Parents of Adopted Children with OI

Parents of babies with OI type 2

Parents of OI Tweens to Twenties

Parents with OI

Puget Sound OI Peer Group

Rocky Mountain OI Support Group

Sex, love, and relationship talk for people with OI

Snowflake Central: A Teach & Share Place for OI Families

Tennessee OI Support Group

The OI Mall

Type 2-4 osteogenesis Imperfecta ppl& family

Type V OI

Women with OI Forum

Young Adults with OI

 

 

You may be directed to the group's volunteer moderator if you would like to join or have any questions. If you moderate or participate in a group that you would like added to this page, please email bonelink@oif.org.


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