Additional Resources for Online OI Support 

OI-Related Facebook Pages 

The OI Foundation encourages members of any OI-related forum on Facebook to promote mutual support and healthy discussion, voicing their opinions in thoughtful and respectful ways. The pages listed below are a service for members of the OI Community who want options to connect with others online.  These pages listed are managed by volunteers outside of the OIF staff and are NOT endorsed or sanctioned by the OI Foundation.  Individuals may find different groups to be more informative or supportive to their particular needs. The OIF does not encourage sharing private or sensitive medical information on any social media page.  

Please note: In order to view and participate in the Facebook groups and forums, you will need an active Facebook account.   

Osteogenesis Imperfecta Research

OI Parents 

*O.I’m Strong* 

Osteogenesis Women's Forum

Type 2-4 osteogenesis Imperfecta ppl & family

Health & Fitness for O.I. (Osteogenesis Imperfecta)

OI Support in Arabic

Type V OI

Osteogenesis Imperfecta Type 1/Mild Form

O.I Group for Families and Therapists

Osteogenesis Imperfecta Canada

Parents of Adopted Children with OI

Parents of OI Tweens to Twenties

OI Parenting!

Osteogenesis Imperfecta. "We have Unbreakable Spirits!"

Osteogenesis Imperfecta

Osteogenesis imperfecta en español

Osteogenesis Imperfecta Awareness

ANOI - Amigos Nacional da Osteogenesis Imperfecta


You may be directed to the group's volunteer moderator if you would like to join or have any questions. If you moderate or participate in a group that you would like added to this page, please email

CFClogo Medical Research Charities logo nhc logo nord-member-org.300x100.png Medical Research Charities logo Medical Research Charities logo