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OI Information Center
Videos, factsheets and booklets about understanding and living with OI


2015 OI Clinic Directory
OI Clinics offer the benefit of a medical team experienced with OI and able to coordinate care.  Regular appointments typically include time with a primary care doctor, orthopedist, and members of the rehabilitation team.  Additional appointments with other specialists are available as needed. See the 2015 OI Clinic Directory for details on services, locations and contact information. 

**An update has been made to the listing for the Kennedy Krieger Institute's OI Clinic as of the end of August 2015. For more information, please see the new directory or contact the OI Foundation by calling (301) 947-0083 or emailing**

Physician Referrals
For information about physicians who have experience with OI, please contact the Information Center at the OI Foundation office.  Call (301) 947-0083 or send an email to

Books, booklets and brochures are fully described in the online store. Many of these resources are Adobe Acrobat files and can be read online or printed for your use. Download the free Adobe Acrobat reader here, if needed. 

Therapeutic Strategies for OI: A Guide for Physical and Occupational Therapists
Available through Online Store or as a PDF

Caring for Infants and Children with OI
Available through Online Store or as a PDF (Spanish Version)

Introduction to Osteogenesis Imperfecta: A Guide for Medical Professionals, Individuals and Families Affected by OI
Available through Online Store or as a PDF

The Osteogenesis Imperfecta Foundation
Available through Online Store or as a PDF

Growing Up with OI: A Guide for Children (see Online Store)

Jason’s First Day 
(see Online Store)

Emily's First Day (see Online Store)

Handle with Care

Fact Sheets

The OI Foundation has published fact sheets on many topics related to understanding and living with OI. The following list is in alphabetical order.

About OI
Fast Facts about OI

Understanding Type I OI
Understanding Recessive OI
Social & Emotional Issues of Living with OI

Adults and OI
Maintaining Health
    Adults & Fracture Care


Babies and OI
Pregnancy: Women who have OI
Pregnancy: Expecting a Child with OI

Infant Care Suggestions for Parents

Bone Mineral Density
Bone Structure

Medicines for OI: Bisphosphonates
Question and Answers
     Bisphosphonate Statement
Fracture management
Physical Therapy and Exercise
Exercise & Activity
Swimming for Fun and Fitness

Child Abuse
    Child Abuse Issues
    Child Abuse or Osteogenesis Imperfecta

Doctors and Hospitals
Medical Research/Clinical Trials
Emergency Department Management
Talking with your Orthopedist
Talking with your Primary Care Physician
Transition from Pediatric to Adult Care

Early Intervention Programs
     Education Issues
     Resources for Schools
     Preparing to Send My Child to School

Career Planning for Students with OI
     Checklist for College Accommodations
     College Search Resources
     College Financial Aid Resources
     Guidelines for College Selection Process

Adoption and Foster Parent Information
Planning a Family

Financial Planning for Parents
Understanding Social Security

ealth Issues

Dental Care
Flu Facts

     Hearing Loss and OI
     Cochlear Implants
     How to Prevent Hearing Loss

Pain Management
Respiratory Issues

Life Skills
Adaptive Equipment
Adapting Cars, Vans or Trucks for Drivers with OI
Home Modification
Learning How to Drive

Summer Camps

    What is Scoliosis
    Vertebral Compression Fracture
    Vertebral Fracture Information
    Vertebral Fracture Prevention

    Anesthesia Information
    Planning for a Child’s Surgery

    Surgery Considerations for Adults & Children
    Rodding Surgery
    Rods and MRI
    Handle with Care Poster

Video Learning Center
Videos based on interviews with medical experts, parents of children who have OI and adults who have OI will be posted here as they become available. All information in the videos is reviewed by OI Foundation medical advisors. 

Last updated- August 20, 2015

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