Information Center

Books, booklets and brochures are fully described in the Online Store. Many of these resources are Adobe Acrobat files and can be read on-line or printed for your use. Download the free Adobe Acrobat reader here, if needed.

Reviews and Comments

Handle with Care by Jodi Picoult


Books

• Growing Up with OI - available as a two book set or sold singly
• Growing Up with OI: A Guide for Families & Caregivers (see Online Store)
• Growing Up with OI: A Guide for Children (see Online Store)
• OI A Guide for Nurses (see Online Store)
• Children with OI: Strategies to Enhance Performance (see Online Store)
• Managing Osteogenesis Imperfecta: A Medical Manual (see Online Store)
• Jason’s First Day! (see Online Store)

Booklets    

• Guide to Osteogenesis Imperfecta for Pediatricians and Family Practice Physicians
• Available through Online Store or as a PDF
• Therapeutic Strategies for OI: A Guide for Physical and Occupational Therapists
• Available through Online Store or as a PDF
• Plan for Sucess
• Available through Online Store or as a PDF
• Caring for Infants and Children with OI
• Available through Online Store or as a PDF
• National Coalition for Osteoporosis and Related Bone Health
• Recommendations from the Summit for a National Action Plan for Bone Health

Brochures

• Osteogenesis Imperfecta: An Introduction for Medical Professionals, Individuals, & Families
• Available through Online Store or as a PDF
• The Osteogenesis Imperfecta Foundation
• Available through Online Store or as a PDF

Poster
Handle with Care

Fact Sheets
The OI Foundation has published fact sheets on many topics related to understanding and living with OI. The following list is in alphabetical order.

Adaptive Equipment
Adapting Cars, Vans or Trucks for Drivers with OI
Adoption and Foster Parent Information
Adults:
    Maintaining Health
    Adults & Fracture Care
Bisphosphonates:
    Question and Answers
    Bisphosphonate Statement
Bone Mineral Density
Bone Structure
Calculating a Healthy Weight
Child Abuse:
    Child Abuse Issues
    Child Abuse or Osteogenesis Imperfecta
College:
    Career Planning for Students with OI
    Checklist for College Accommodations
    College Search Resources
    College Financial Aid Resources
    Guidelines for College Selection Process
Constipation
Dental Care
Education:      
    Early Intervention Programs
    Education Issues
    Resources for Schools
    Preparing to Send My Child to School
Emergency Department Management
Exercise & Activity
Fast Facts about OI
Financial Planning for Parents
Flu (H1N1)
Flu Shots
Fracture management
Genetics
Hearing:
    Hearing Loss and OI
    Cochlear Implants
    How to Prevent Hearing Loss
Hepatitis C and OI
Home Modification
Hypophosphatasia
Infant Care Suggestions for Parents
Learning How to Drive
Medical Research/Clinical Trials
Nutrition
Osteoporosis
Osteonecrosis of the Jaw (ONJ)
What is Osteonecrosis of the Jaw?
Pain Management
Planning a Family
Pregnancy: Women who have OI
Pregnancy: Expecting a Child with OI
Respiratory Issues
Spine:
    What is Scoliosis
    Vertebral Compression Fracture
    Vertebral Fracture Information
    Vertebral Fracture Prevention
Social & Emotional Issues of Living with OI
Summer Camps
Surgery:
    Anesthesia Information
    Planning for a Child’s Surgery
    Surgery Considerations for Adults & Children
    Rodding Surgery
    Rods and MRI
    Handle with Care Poster
Swimming for Fun and Fitness
Talking with your Orthopedist
Talking with your Primary Care Physician
Transition from Pediatric to Adult Care
Travel
Understanding Type I OI
Understanding Recessive OI
Understanding Social Security
Weather Emergencies