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Information Center


Physician Information
For information about physicians who have experience with OI, please contact the Information Center at the OI Foundation office. Call 301-947-0083 or send an email to

Reviews and Comments
Information on the FDA and the Fassier-Duval IM Telescopic System 
FDA Bisphosphonate Update
Handle with Care by Jodi Picoult


Video Learning Center
Videos based on interviews with medical experts, parents of children who have OI and adults who have OI will be posted here as they become available. All information in the videos is reviewed by OI Foundation medical advisors. 


Books, booklets and brochures are fully described in the online store. Many of these resources are Adobe Acrobat files and can be read online or printed for your use. Download the free Adobe Acrobat reader here, if needed. 

Growing Up with OI - available as a two book set or sold singly
Growing Up with OI: A Guide for Families & Caregivers (see Online Store)
Growing Up with OI: A Guide for Children (see Online Store)

OI A Guide for Nurses (see Online Store)

Children with OI: Strategies to Enhance Performance (see Online Store)

Managing Osteogenesis Imperfecta: A Medical Manual (see Online Store)

Jason’s First Day! (see Online Store)

Guide to Osteogenesis Imperfecta for Pediatricians and Family Practice Physicians
Available through Online Store or as a PDF

Therapeutic Strategies for OI: A Guide for Physical and Occupational Therapists
Available through Online Store or as a PDF
Plan for Sucess
Available through Online Store or as a PDF
Caring for Infants and Children with OI
Available through Online Store or as a PDF
National Coalition for Osteoporosis and Related Bone Health
Recommendations from the Summit for a National Action Plan for Bone Health

Introduction to Osteogenesis Imperfecta: A Guide for Medical Professionals, Individuals and Families Affected by OI
Available through Online Store or as a PDF

The Osteogenesis Imperfecta Foundation
Available through Online Store or as a PDF

Handle with Care

Fact Sheets

The OI Foundation has published fact sheets on many topics related to understanding and living with OI. The following list is in alphabetical order.

Adaptive Equipment
Adapting Cars, Vans or Trucks for Drivers with OI
Adoption and Foster Parent Information
    Maintaining Health
    Adults & Fracture Care
    Question and Answers
    Bisphosphonate Statement
Bone Mineral Density
Bone Structure
Calculating a Healthy Weight
Child Abuse:
    Child Abuse Issues
    Child Abuse or Osteogenesis Imperfecta
    Career Planning for Students with OI
    Checklist for College Accommodations
    College Search Resources
    College Financial Aid Resources
    Guidelines for College Selection Process
Dental Care
    Early Intervention Programs
    Education Issues
    Resources for Schools
    Preparing to Send My Child to School
Emergency Department Management
Exercise & Activity
Fast Facts about OI
Financial Planning for Parents
Flu Facts
Fracture management

    Hearing Loss and OI
    Cochlear Implants
    How to Prevent Hearing Loss
Hepatitis C and OI
Home Modification
Infant Care Suggestions for Parents
Learning How to Drive
Medical Research/Clinical Trials
Osteonecrosis of the Jaw (ONJ)
What is Osteonecrosis of the Jaw?
Pain Management
Planning a Family
Pregnancy: Women who have OI
Pregnancy: Expecting a Child with OI
Respiratory Issues
    What is Scoliosis
    Vertebral Compression Fracture
    Vertebral Fracture Information
    Vertebral Fracture Prevention
Social & Emotional Issues of Living with OI
Summer Camps
    Anesthesia Information
    Planning for a Child’s Surgery

    Surgery Considerations for Adults & Children
    Rodding Surgery
    Rods and MRI
    Handle with Care Poster
Swimming for Fun and Fitness
Talking with your Orthopedist
Talking with your Primary Care Physician
Transition from Pediatric to Adult Care
Understanding Type I OI
Understanding Recessive OI
Understanding Social Security
Weather Emergencies

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