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Find a Support Group or Support Resource


Find a Support Group or Support Resource

The OI Foundation offers several resources for connecting with individuals with OI and OI families. All of the resources listed below allow participants to ask questions, share information, and offer mutual support to others.

OI Foundation Forum Facebook Page
A Facebook discussion page for the OI community. You must be logged into Facebook to view this page. Also be sure to visit the OI Foundation's Official Facebook page for important announcements and updates from the OI Foundation!

Official OI NING
The official NING site for the OI Foundation. NING is a social networking site that allows users to create their own profile pages, and participate in discussion threads with other users.

OI Parents Facebook
A volunteer managed Facebook page for OI parents.

OI Dads Facebook
A volunteer managed Facebook page for fathers of children with OI.

List of International OI Associations

Please note: In order to view and participate in the Facebook groups, you will need an active Facebook account. For questions or concerns about any support resource, please contact bonelink@oif.org. Some of the resources listed above are volunteer managed and not official OI Foundation sites, in which case you may be directed to the volunteer moderator.

OI FOUNDATION SUPPORT GROUPS
Support Group Leaders listed on this page represent community based groups of people affected by OI. These get-togethers are first and foremost a social gathering. Speakers may be scheduled from time to time to provide information on topics of interest to the group. Some groups choose to organize local fundraisers and raise awareness about OI in their communities.

Local contacts are not responsible for holding meetings but are available to offer support, answer questions and direct you to resources.

The information on this page is intended to help you connect with the OI community in your area. Please email or call a support group leader or contact person to join a group or to learn about local resources and activities.

Meetings are listed on the Online Calendar.

If you are interested in starting a Support Group in your area, contact the OI Foundation or visit the Start a New Local Support Group page.

State/Area

Name (Email link)

Phone

Alabama

Shellie Gruenwald - contact

 Dana Busby-support group leader

850-496-2626


334-216-2259

Arizona

Lauri Alexander - contact
Jen Adler - contact


480-649-2070

Northern California


Bill Scarberry - support group leader
Anastasia Scarberry - support group leader
Beth Gero - support group leader

916-955-0978
916-474-9073
925-516-6439

Southern California

Michelle Hofhine - support group leader

805-484-8723

Connecticut

Sharon Werner - support group leader

860-677-4429

Colorado Christina Carney-
support leader
970-964-4250

Florida- Tampa

Susie Wilson - support group leader
Gail Bunker - support group leader
Shellie Gruenwald - contact

239-482-6892
813-657-0049
850-969-0006

Florida-Southern

Missy Monokian - support group leader

305-528-2336

Florida-
Broward and Palm Beach County
Michele Burka-
support group leader
954-721-2879

Georgia

Sharon Mutnick - contact 
Aimee Strickland - support group leader

770-663-6428
770-296-9391

Idaho


Trisha Taylor - support group leader

208-969-0791

Illinois

Jean Grys - contact
Mary Rozema - contact

309-353-4988
815-463-0687

Indiana

Michelle Hoppes - contact

765-553-6600
765-278-1840 

Iowa

Joan Jacobs - support group leader
Sara Moffett - contact
 
Robin and Jerome Hawco -support group leader

641-777-7055
641-903-6393

Kentucky

Cheryl Pena  - support group leader
Angie Skaggs - support group leader   

859-744-3679
270-533-6066

Kansas

Susie Gibson - contact

Stephanie Guin - support group leader

816-650-6344

913-541-4770

Louisiana

Brad and Kristie Monson - support group leader

337-288-1744

Massachusetts

Sean Bevan - support group leader

781-326-7500 x3355

Massachusetts-South Shore Cheryl Manduca - support group leader

508-292-0562

Michigan Mark Peck
Kim Peck

517-336-7200
517-882-4147

Minnesota

Erin DeBlieck - support group leader

507-931-3454

Missouri

Susan Wright - contact

Jennifer Fischer - contact


 Stephanie Guin-support group leader

636-931-5607

417-845-8105
417.592.3117(cell)

913-541-4770

Montana

Karrie Levanen - support group leader

406-257-9001

New Jersey

JoAnn Berkenbush - support group leader
Rosemarie Kasper - support group leader

201-314-5289

New Mexico

Curtiss Wilson - support group leader

505-750-8207

New York
New York-Long Island

Brett Eisenberg - contact
Paul Granger - support group leader 

347-433-3342
516-796-0457

North Carolina

Ray Rogers - support group leader

Naveen KV Muralidharan

 

910-392-7778


919-534-5078

 

Ohio

Renee Riegel - contact
Cyndi Ashland - support group leader
Rena Sorensen-Burnworth - support group leader

937-830-2020
513-467-9588
513-673-3878

Ohio (NE)

Shelley Keil - contact

 

Ohio (Northern)

Les & Erin Szavuly - contact

419-824-3685

Ohio (SE) Cassandra Gililland - support group leader 304-840-9660
Oklahoma (SE) Jennifer Fischer - contact
417-845-8105
417-592-3117 (cell)

Oregon

Shannon Parker-support group leader
Julie Schlafle
 - contact

503-881-6240
503-285-2283

PA (Pittsburgh)

Chaz Kellem - support group leader

412-913-6357

Rhode Island Sue Kortick-support group leader

401-444-5794

Texas (Central)

Debbie Wiederhold - support group leader

512-255-4422

Texas (Dallas)

Molly Lyke - support group leader 
Elise Russell - contact

214-520-3023
817-577-0056


Tennessee

Erin Boland Gipson
- support group leader
 

256-298-0015
 

Utah

Angie Livingston - contact

801-536-3649

Virginia - Tidewater 

John Crandley - support group leader

757-477-6023

Washington

Diane Wysocki - support group leader

206-713-7208

West Virginia Wendy Barb - support group leader  

Wisconsin

Jennifer Reese - contact
Kathy Shine - contact
Daniel Shine - contact

262-646-3887
414-383-4777
414-383-4777

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