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The OI Foundation has obtained funding, primarily through individual contributions for a limited number of scholarships to the 17th Biennial National Conference on OI. All those wishing to attend conference but are unable to due to financial limitations are encourage to apply.
Families and individuals are encouraged to explore all possible sources of funding. In some cases money to help people attend conferences about rare health disorders, like OI, is available from state agencies, school systems or community organizations.
- Consult with school counselors, your child’s local special education department, hospital social workers, case workers and members of your network group.
- If on Medicaid, contact your case worker to see if you qualify for ongoing educational training.
- State resources (variously named, Consumer Investment Fund, Consumer Involvement Fund, etc.) as listed on the state’s web site.
- Tips for state funding search: Go to the state website (www.statename.gov). Type in DD council or disability. Look for Consumer Investment Funds or conference stipends. If that is not helpful call the state office and ask if they have funds available.
- Confer with your tax advisor. According to PUB 502 (2007), people who itemize their deductions can include paid admission and transportation to a medical conference concerning a chronic illness of a family member. The majority of time spent at the conference must be spent attending sessions on medical information. Lodging and meals are not deductible.
- Investigate web sites such as:
- Family voices: www.familyvoices.org
- Parent-to-Parent: www.taalliance.org
Applications are due by March 15, 2010. Scholarships recipients will be notified by April 12, 2010.
2010 Conference Scholarship Application
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