conference header

In 2012, more than 800 members of the OI community gathered in Washington, DC for the 2012 OI Foundation National Conference.—let’s make 2014 even better! Join us for three days of informational sessions, free medical consultations, and social activities—including the first-ever National Unbreakable Spirit® Walk-n-Wheel!

As you begin making your travel and hotel arrangements, don’t forget about our pre-conference activities on Thursday, July 31st and Friday, August 1st (before the official program of the National Conference begins at 4pm.) We hope to see you there! 

Register Now


Conference Home
Conference Program
 Hotel & Travel
 National Walk-n-Wheel
 Youth Forum
 Women's Forum
Medical Consultations
Guess the 2016 City!



Thursday, July 31 at 5pm

National Unbreakable Spirit® Walk-n-Wheel
To kick-off our National Conference weekend, the OI community will come together to participate in the National Unbreakable Spirit®Walk-n-Wheel for OI! Beginning at the JW Marriott, participants will walk or wheel one of Indianapolis’ most beautiful landmarks, the Canal Walk of White River State Park.  You can choose between the 1k or 5k courses (or shorter!), both of which will end back at the JW Marriott where we will celebrate all of our participants and supporters.  You can walk or wheel individually; form a team with your family, friends or support group members; volunteer; become a supporting sponsor; or show up to cheer on the sidelines.  Help us take Indianapolis by storm and make the Unbreakable Spirit® of the OI community known! For more information or to set up your personal team raiser page, visit or contact Melissa Bonardi at

Friday, August 1

Medical Consultations
Medical Consultation appointments will be held from 8:30am-3:30pm. This special feature offers people attending the National Conference the opportunity to meet with specialists, who are experts in OI, for a one-on-one in depth conversation. While no examinations can be given, reports and x-rays may be reviewed. All medical consultation requests that we have received have been filled. Only a few openings for appointments with one of the geneticists are still available. If you have a scheduled appointment and need to cancel, please let us know as soon as possible. Email if you have any other questions.

Women’s Forum
The Women’s Forum will begin at 9am. and end before the Opening Session of the National Conference at 4pm. The women’s forum is only open to OI women over the age of 18 and will cover  health and social topics specific to women living with OI. There is an additional registration fee to attend this event.

Youth Forum
The Youth Forum will begin at 10am and end before the Opening Session of the National Conference at 4pm. The Youth Forum is open to youth and young adults ages 16-25 and will feature presentations and discussions relating to young adults. Topics include living on your own, school and career, and social life. There is no additional registration fee to attend this event.

Talent Show
The popular talent show is back again at Conference! The talent show will take place Fridat evening at 7pm with a cake reception following the performances. A rehearsal will also occur Friday afternoon, prior to the show. Anyone who wants to share their special talent is invited to sign-up. Acts may be no longer than two minutes. Please fill out the application and send it back to sign-up.  

More details will be posted on in the upcoming months. Please contact with any questions about these exciting pre-conference activities.

Look Who's Speaking at the OIF Conference!



CFClogo Medical Research Charities logo Charity Navigator logo National Health Council logonord-member-org.300x100.png