medical consultation


The OI Foundation Medical Consultation Day offers families and adults who have OI the opportunity to have a face-to-face meeting with a physician or physical therapist who has extensive experience with OI. A consultation is a conversation, no exams can be given. It is the chance to get questions answered, to have a test or diagnostic letter explained or to get a second opinion about a treatment.

There are nearly 30 medical consultants from 10 specialized fields available to choose from. Each attendee may request up to three appointments with the specialists of their choice. Each appointment lasts 20 minutes.


The program runs from 8:30am until 3pm on Friday, July 13th.  

information Important Information
• Appointments are free of charge
• Each appointment is 20 minutes long
• All appointments are held in the conference hotel ballroom
• No examinations are allowed; only conversation
• Appointments are limited - each person will receive time with one or two of the specialists depending on the number of people who submit a request
• Adults and Parents must be registered for the National Conference by June 1st to receive a priority appointment

 

sign up Request an appointment

Appointment requests are now being accepted. Conference attendees will receive their schedule of appointments the first week of June. To view the available specialists or request an appointment, download this FORM.  To confirm your appointment request, please contact the OI Foundation Office at (844) 889-7579 or bonelink@oif.org.

 

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Field

Medical Consultant

Adult Health

Sandesh Nagamani, MD
Director of the Clinic for Metabolic and Genetic Disorders of Bone, Baylor College of Medicine, Houston, TX

Jay Shapiro, MD
Endocrinologist in Private Practice, Bethesda, MD

Orthopedics

Paul Esposito, MD                    
Co-Director for the OI Clinic at Children’s Hospital and Medical Center, Omaha, NE

Jeanne Franzone, MD
Pediatric Orthopedic Surgeon at Nemours/A.I. duPont Hospital for Children in Wilmington, DE

Richard Kruse, DO, MBA    
Co-Director for the Multidisciplinary OI Clinic, Nemours/Alfred I. duPont Hospital for Children in Wilmington, DE

Cathleen Raggio, MD
Co-Director Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias, Hospital for Special Surgery, NYC

Suken Shah, MD
Division Chief of the Spine and Scoliosis Center at Nemours/A.I. duPont Hospital for Children in Wilmington, DE

Laura Tosi, MD
Director of the Bone Health Program at Children’s National Medical Center in Washington, DC

Maegan Wallace, MD
Pediatric Orthopedic Surgeon at the OI Clinic at Children’s Hospital and Medical Center, Omaha, NE

Genetics

 

 

 

Michael Bober, MD, PhD   
Director of the Skeletal Dysplasia Program A.I. duPont Hospital for Children, Wilmington, DE

Peter Byers, MD 
Professor at the University of Washington School of Medicine, Seattle, WA

V. Reid Sutton, MD            
Medical Director of Biochemical Genetics, Baylor College of Medicine in Houston, TX

Pediatrics

Emily Germain-Lee, MD    
Co-Director of the OI Clinic, Connecticut Children’s Medical Center

Francis Glorieux, OC, MD, PhD
OI Clinic Director at Shriners Hospital for Children, Montreal QC, Canada

Danielle Gomez, MD
OI Clinic Director and Pediatric Endocrinologist at Shriners Hospitals for Children in Tampa, FL

Mahim Jain, MD, PhD
Director of the OI Clinic at Kennedy Krieger Institute, Baltimore, MD

Frank Rauch, MD
Director of the Biomedical Laboratory at Shriners Hospital for Children, Montreal QC, Canada

Physical Therapy

Frances Baratta-Ziska, PT, DPT, MS, PCS  
Clinical Supervisor of Pediatric Rehabilitation at the Hospital for Special Surgery, New York City

Reenee Donohoe, PT, DPT, PCS
Clinical Specialist of Pediatric Rehabilitation at the Nemours/A.I. duPont Hospital for Children in Wilmington, DE

Beth Jacks, MS, PT
Physical Therapist

Christopher Joseph, DPT
Director of Physical Therapy at the Kennedy Krieger Institute, Baltimore, MD

Dental

Jay Neugarten, DDS, MD, FACS
Oral and Maxillofacial Surgeon of the New York Center for Orthognathic and Maxillofacial Surgery

Jean-Marc Retrouvey, DMD
Director of the Orthodontic Division at McGill University in Montreal, QC, Canada

Kevin Ricker, DDS, MS
Pediatric Dentist at Chatham Pediatric Dentistry

Hearing

David Vernick, MD
ENT-Otolaryngologist at the Joint Center for Otolaryngology in Boston, MA

Respiratory

Hollis Chaney, MD                               
Pulmonologist at the Children’s National Medical Center in Washington, DC

Robert Sandhaus, MD, PhD               
Pulmonologist at the University of Colorado School of Medicine, and National Jewish Health, Denver, CO

Women’s Health

Deborah Krakow, MD 
Chair ofthe Department of Obstetrics and Gynecology at UCLA, David Geffen School of Medicine, Los Angeles, CA

Psychosocial (Resource Referral)*

Kara Ayers, PhD
Associate Director of the University of Cincinnati Center of Excellence for Developmental Disabilities


This list of professionals is subject to change. Requests for appointments will be confirmed by mid-June.


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