It’s not too early to make your hotel reservation!
The full conference will take place at the JW Marriott in downtown Indianapolis and the hotel is offering conference attendees a discounted room rate of $149 per night. To make your reservation, visit https://resweb.passkey.com/go/OIF2014 or call 866-704-6162 and mention that you are with the “Osteogenesis Imperfecta Foundation” National Conference.
We hope to see you there! Last summer, more than 800 members of the
OI community gathered in Washington, DC for the 2012 OI Foundation National
Conference.—let’s make 2014 even better! Join us for three days of
informational sessions, free medical consultations, and social activities—including
the first-ever National Unbreakable Spirit®
Walk-n-Wheel for Better Bones.
Check back often for updates on registration and conference program!
Did you miss the 2012 OI Foundation National Conference?
Here you can find handouts from some of the conference sessions and audio of the opening session. For more questions about the OI Foundation's National Conference please email email@example.com.
Listen to Gary Patti deliver his keynote address "Unbreakable Hope! How to survive and thrive when the odds seem overwhelming" at the 2012 OI Foundation National Conference!
Born with osteogenesis imperfecta. Gary experienced over 90 broken bones from the time he was two weeks old. As a result, Gary faced challenges at every turn, from physical immobility to social isolation and prejudice. These barriers didn’t stop him. In fact, Gary’s disabilities helped him develop the ability to overcome setbacks and obstacles with a fierce determination to never give up, the courage to dream big, and the tenacity to go beyond his own imagination. Gary was a nationally ranked athlete, owns one of the longest running independent health clubs in the country, owns an athletic training clinic for youth, is an ordained minister, a motivational speaker, and is happily married to his wife Amparo. His question, “What’s stopping you?”
Aquatic Therapy: From Infancy
Sheri Dawson, MPT, Nemours/Alfred I. duPont Hospital for
Karen Josefyk, MSR, PT, Nemours/Alfred I. duPont Hospital for Children,
The aquatic environment is a safe place to explore and practice movement for
people with osteogenesis imperfecta.
Whether a person is learning a new skill or regaining an old skill
following an injury, the properties of water are utilized to strengthen muscles
and improve endurance while protecting his or her bone health. The pool is a
place to master a skill in a gravity-lessened environment prior to attempting
those same skills on land. The pool can assist in alleviating the fear of movement
while building self-confidence and is an ideal place for skilled
rehabilitation. Most importantly the aquatic environment is a wonderful place
for integrating people with OI into lifelong fun, fitness, and community
activities. The participants in this session will; understand the basic
properties of water and how they impact a person’s body while in the water,
learn strategies to encourage early movement for infants with OI, understand
appropriate fracture rehabilitation ideas for all ages and verbalize the
importance the aquatic environment has on lifelong activity for people with OI.
Jamie Kendall, Social Security
Mia Ives-Rublee, MSW, Vocational Rehab Counselor
Tips for preparing for, applying for, and interviewing. Ms. Kendall is former
President of the OIF Board of Directors.
Get Moving: Physical Activity for Children with OI
Maureen Donohoe, PT, DPT, PCS,
Nemours/Alfred I. duPont Hospital for Children, Wilmington
One goal of treatment is to allow a child to do the physical things he or she
wants and needs to do. This session will explore recreation, adaptive sports
and other exercise strategies.
Strategies, Picky Eaters, Etc.
Sharon Werner, RD, CDE, CD-N, Connecticut
Children’s Medical Center
Strategies for managing picky eaters, healthy weight and appetites will be
discussed, along with menu planning and shopping tips.
Self-Advocacy in Medical Situations
Cathleen Raggio, MD, Hospital for Special
Surgery, New York
Susan Wilson, OI advocate
Information all adults should know about managing your experience in various
medical situations including; testing, anesthesia, medical records, and