conf program


The OI Foundation is looking forward to hosting a wide range of information sessions and family-friendly activities at the OIF National Conference this summer! In case you are new to the world of OIF National Conferences, this event is the premier educational and social experience for families and individuals living with osteogenesis imperfecta.

The three-day program boasts a schedule full of information sessions on medical and practical living topics, opportunities for one-on-one medical consultations with leading experts in OI research and care, and an abundance of additional activities designed to address important issues for members of the osteogenesis imperfecta community.

For questions about conference sessions, please email

Conference Home
Conference Program
 Hotel & Travel
 National Walk-n-Wheel
Medical Consultations
OIF Talent Show, Art Showcase, & Career Fair
 Visiting Baltimore
 Sponsorship Opportunities



clock Schedule


Thursday, July 12th    
  5:30pm - 6:30pm National Unbreakable Spirit® Walk-n-Wheel
Friday, July 13th    
  8:30am - 3:00pm Medical Consultations (by appointment)
  2:00pm - 3:00pm Introductory Session- The Basics of OI
  3:30pm - 5:00pm Welcome and Opening Session
  5:00pm - 7:00pm Career Expo
  7:30pm - 10:00pm Talent Show 
  9:30pm - 10:30pm Teen Center Icebreaker/Trivia Night
Saturday, July 14th    
  8:30am - 5:30pm Childcare
  7:00am - 8:30am Breakfast
  9:00am - 10:30am Plenary Session- Research Update
  10:45am - 5:00pm Teen Center
  10:45am - 12:30pm Pediatric Physician Panel Session
Adult Physician Panel Session
  12:30pm - 2:00pm Lunch/Physician Q&A Roundtable Discussion
  2:00pm - 5:00pm OI Youth Empowered and Proud (OI YEP) Forum
  2:00pm - 5:00pm Mild OI Forum
2:00pm - 3:15pm 

Breakout Sessions
Orthopedics: Rodding Surgery
Thirty Years of OI Research
Understanding OI Types and Inheritance Patterns

3:30pm - 4:45pm
Breakout Sessions
Basilar Impression: Symptoms and Treatment 
Cardiopulmonary Health in OI
Hearing Loss: Prevention and Treatment
  5:00pm - 6:00pm Special Edition Plenary Session: Pain and Fatigue
  6:00pm Parents Meet & Greet
  8:00pm An Evening with Gaelynn Lea (Concert)
  9:00pm Teen Room After-Hours Game Night
    Adults Meet-Up
Sunday, July 15th
  7:00am - 8:00am Morning Meditation
  8:30am - 5:30pm Childcare
  7:00am - 8:30am Breakfast
  9:00am - 10:15am Plenary Session- State of the OI Foundation
  10:30am - 12:30pm Dental Forum
  10:30am - 12:30pm Physical Therapy and Rehabilitation Forum 
  10:45am - 5:00pm Teen Center
  2:00pm - 4:15pm Women's Wellness Forum
  2:00pm - 4:15pm Men's Wellness Forum
2:00pm - 3:00pm

Breakout Sessions
504 Plans and IEP Educational Advocacy
Adjusting Well Over Major Life Transitions
Independent Living Strategies

  3:15pm - 4:15pm Breakout Sessions
Parenting Teenagers and Preparing for Their Transition to Adulthood
Achieving Optimal Health through Nutrition
Tools to Advocate in Emergency Situations
  6:00pm - 6:30pm Reception
  6:00pm - 9:30pm Closing Dinner and Dance

The program schedule is subject to change. Stay tuned for more details about additional activities and forums.

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