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National Osteogenesis Imperfecta Awareness Week, originated from and is scheduled around Wishbone Day (an international OI Awareness Day on May 6th). During Awareness Week, we encourage the OI community, Foundation, and supporters to use fundraising events, social media, and individual state proclamations to raise awareness for osteogenesis imperfecta. 

 

Looking for ways to participate in National OI Awareness Week 2016?

 1. Change your Facebook profile and cover photo to show your support of National OI Awareness Week 2016!

 2. Hang OI Awareness Week Posters (print here)

3. JOIN THE OI CONTACT REGISTRY 

An important part of the OIF’s awareness and education goals includes expanding the knowledge about OI among medical professionals and researchers. Help the Rare Diseases Clinical Research Network accelerate research in the field of OI by joining the RDCRN Contact Registry. Joining this registry is your opportunity to participate in the next wave of important discoveries about OI.

Help us reach our goal of registering 1350 Contact Registry participants by the end of OI Awareness Week! We are currently at 1050 participants. Please encourage your friends and family to join- every person who has OI, child or adult, is eligible join this registry!

 Joining the Contact Registry is quick and easy! Sign up online at www.rarediseasesnetwork.org/cms/bbd/Get-Involved/ContactRegistry

4. ATTEND AN AWARENESS WEEK EVENT! There are OI awareness events taking place across the country this week- check the list below for one in your area:

 2016 Unbreakable Spirit Walk-n-Wheel: Nashville

The Alle Shea Project Presents Cracking Up for Better Bones: Webster, NY

Applebee’s Dining to Donate: Scranton, PA 

2016 Unbreakable Spirit Walk for OI: Buzzards Bay, MA

CT & Western MA Support Group May 2016 Meeting

5. #SHAREforAWARENESS! We reached over 175,000 people through social media during OI Awareness Week 2015 - help us reach even more people during OI Awareness Week 2016! Be sure to share and retweet Awareness Week posts on Facebook and Twitter throughout the week.

OIF Facebook

OIF Twitter

AW prof pic


Order OI Awareness Wristbands from the OIF Online Store!

Stay in the loop! For more information about National OI Awareness Week and the OIF, “Like” the OI Foundation Facebook page and follow @OIFoundation on Twitter! 

 


Addison tea Fredrick Running Festival Shine your way Freewill Elementary

Raising awareness for OI is important year-round! For ideas on how to raise awareness in your community, visit www.oif.org, or contact DCymber@oif.org.


 





 

 

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