National Osteogenesis Imperfecta Awareness Week, originated from and is scheduled around Wishbone Day (an international OI Awareness Day on May 6th). During Awareness Week, we encourage the OI community, Foundation, and supporters to use fundraising events, social media, and individual state proclamations to raise awareness for osteogenesis imperfecta.
for ways to participate in National OI Awareness Week 2016?
1. Change your
Facebook profile and cover photo to show your support of National OI Awareness
Hang OI Awareness Week Posters (print here)
THE OI CONTACT REGISTRY
part of the OIF’s awareness and education goals includes expanding the
knowledge about OI among medical professionals and researchers. Help the Rare
Diseases Clinical Research Network accelerate research in the field of OI by
joining the RDCRN Contact Registry. Joining this registry is your opportunity
to participate in the next wave of important discoveries about OI.
reach our goal of registering 1350 Contact Registry participants by the end of
OI Awareness Week!
We are currently at 1050 participants. Please encourage your friends and family
to join- every person who has OI, child or adult, is eligible join this
Joining the Contact
Registry is quick and easy! Sign up online at www.rarediseasesnetwork.org/cms/bbd/Get-Involved/ContactRegistry
ATTEND AN AWARENESS WEEK EVENT! There are OI
awareness events taking place across the country this week- check the list
below for one in your area:
2016 Unbreakable Spirit Walk-n-Wheel: Nashville
The Alle Shea Project Presents Cracking Up for Better
Bones: Webster, NY
Dining to Donate: Scranton, PA
2016 Unbreakable Spirit Walk for OI: Buzzards Bay, MA
CT & Western MA Support Group May 2016 Meeting
5. #SHAREforAWARENESS! We
reached over 175,000 people through social media during OI Awareness Week 2015
- help us reach even more people during OI Awareness Week 2016! Be sure to
share and retweet Awareness Week posts on Facebook and Twitter throughout the
Order OI Awareness Wristbands from the OIF Online Store!
Stay in the loop! For more information about National
OI Awareness Week and the OIF, “Like” the OI Foundation Facebook
page and follow @OIFoundation