OIF E-News - December 2014

In this issue:

From the OI Foundation

Happy Holidays!

From the Information Center

OIF Advocacy Update: ABLE Act


From the OI Foundation



Impact Grants Coming Soon!

Applications for Impact Grants will be available on January 5, 2015! Funded and administered by the Children’s Brittle Bone Foundation and OIF, the Impact Grant program offers direct support to individuals and families by providing products or services that will greatly improve their quality of life. Items that have been awarded in the past include wheelchairs, orthotics, hearing aids, and modified vans. Applications and eligibility requirements can be found at www.oif.org/impactgrant. Remember, applications will not be available until January 5 and the deadline for submitting applications is February 10. If you have any questions please email impactgrants@oif.org


Year End Giving

Andersson readingWe are so fortunate at the OI Foundation to have the continued support of the OI community. Because of your generosity, the OI Foundation is able to continue to fund important research, programs and services for families and individuals living with osteogenesis imperfecta. The following letter was recently sent out to our supporters. Please take a moment to consider giving a gift to the OI Foundation so that we can continue providing a high level of service to the OI community. You can make your gift by visiting www.oif.org
Click here to view the End of the Year letter. Thank you!

Andersson Dyke, 13, shares why she donated the
proceeds from her book, Missy, to the OI Foundation

Register today for the OIF Regional Conference in Los Angeles, California- February 7, 2015

Regional logoSpaces are quickly filling up for the OI Foundation’s Regional Conference in Los Angeles, California.  Register online today to reserve your spot at this one-day OI education event, titled “Uniting Unbreakable Spirits”. The conference agenda has a variety of topics for children, parents, and adults, including an opening session with research updates, a “Handling Infants and Children” demonstration, a Youth Discussion, a supervised kids' game room, a closing panel on physical activity, and a social reception at the end of the day. A complete registration for children over the age of 12 and adults costs $35. Children 12 and under are free to attend, but must be registered online. 

The meeting will be held on Saturday, February 7, 2015 at the Shriners Hospital for Children in Los Angeles. Visit the OIF Regional Conference website for a list of speakers, meeting information and registration details.


The OI Foundation’s flagship fundraising event, Fine Wines Strong Bones, will be celebrating its 15th anniversary on Saturday, February 28, 2015 from 6:00 pm to 10:00 pm at the Gaylord National at Washington DC’s National Harbor.  New this year, we have partnered with the Gaylord National to bring you a very special package – valued at over $600.  You will receive a one night stay at the Gaylord National Resort, complimentary overnight parking, two tickets to the 15th Annual Fine Wines Strong Bones event, and Sunday brunch for two at Pienza restaurant - located in the Gaylord atrium - for $500.  But act quickly; this offer ends January 15th.  Please contact Melissa Bonardi at mbonardi@oif.org or 301-947-0083 to make your reservations.

We also have two amazing trips in the works for our Fine Wines Strong Bones auction, so keep your eyes peeled for our online auction or make sure to attend the event and bid live on February 28th!  You could win: a trip for two to Las Vegas – includes airfare for two from Southwest and a two night hotel stay; or four home plate box seats to a Miami Marlins game of your choice - which includes four batting practice passes, a stadium tour, an autographed baseball, airfare and more! The online auction will open on January 26, 2015 - stay tuned for more information.



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Happy Holidays!



amazonsmileLooking for the newest technology, books, clothing, toys, jewelry, shoes, movies and more? Find the perfect gift for everyone on your list on AmazonSmile for Osteogenesis Imperfecta, Inc.! For every online purchase you make, Amazon will make a donation to the OI Foundation. Click here to get started on your holiday shopping! 


xmas tree

Check out the OIF Online Store for new items like Unbreakable Spirit® Snowflakes and Pens! Give the gift of an Unbreakable Spirit® this year!

For more information about AmazonSmile, the OIF Online Store or giving the gift of stock, please contact the OI Foundation.



Enter the OIF Good Stuff Sweepstakes!

swandolphinhotel-view-from-lake.jpgEnter the OI Foundation’s annual sweepstakes for your chance to win!

Prizes include: a 7-Inch Dual Screen Portable DVD Player (valued at $200); a 42” LED TV with HDMI cable (valued at $400); and a trip for four to the 2016 OIF National Conference, complete with four full-conference registrations and a room at the Walt Disney World Swan & Dolphin for three nights (valued at $1200).

 The suggested donation is $5 per entry ticket, but there is no purchase necessary to win. For complete rules click here! 

Good luck!




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From the OIF Information Center

Health Tip: Keep the Holidays Happy

Everyone knows that December is a busy, busy time of the year. The rush for holiday preparations and end of the year projects at school or work can create a lot of stress. To keep your holiday spirits high, don’t forget to take care of your physical and mental health.

  • Get plenty of rest
  • Follow a balanced diet
  • Avoid overscheduling yourself

And the old fashioned, tried and true advice to frequently wash your hands, really does work to prevent catching a cold, the flu or any other illness.


Applications Open for Youth in International Development and Foreign Affairs Internship Program

The US International Council on Disabilities (USICD) is now accepting applications for their summer 2015 internship program for youth interested in international development and foreign affairs careers.  The application is open to graduate students, recent graduates, and rising college juniors and seniors with disabilities and due by January 28, 2015.  To learn more about the internship program, eligibility criteria, and the application process, please visit:http://www.usicd.org/template/page.cfm?id=257


Special thank you to OIF Support Group Leaders, Resource Contacts, and Volunteers!

The OI Foundation would like to send a special acknowledgement and thank you to the OIF support group leaders, resource contacts and volunteers.  OI support groups provide the setting and opportunity for people to share experiences and socialize with others who can personally relate to living with a rare and complex health condition like osteogenesis imperfecta.  Throughout 2014, OIF support group leaders from all over the country have hosted meet-and-greet socials, mixers, day trips, picnics, and other fun, family-friendly activities.  Some support groups have featured speakers with medical information about OI and representatives from local disability related resources.  Many community members are grateful for this helpful, encouraging resource.  Thank you for taking an important role for the Foundation by sharing your knowledge and experiences with the greater OI Unbreakable Spirit® community.  If you are not connected to an OIF support group, and are interested in joining or starting one, please visit the OIF Support Resource Webpage, or email Bonelink@oif.org for more information.


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OIF Advocacy Update: ABLE Act

On December 16, 2014, Congress passed the most significant piece of legislation for Americans living with disabilities since the Americans with Disabilities Act of 1990.  The Achieving a Better Life Experience (ABLE) Act allows people with disabilities to save money in special bank accounts without jeopardizing their government benefits.  The money saved can be used for education, health care, transportation, housing and other essential expenses. This measure passed with overwhelming support from both Democrats and Republicans.  The Osteogenesis Imperfecta Foundation has been honored to stand with so many other advocacy organizations supporting the ABLE Act and we believe this new law presents an important opportunity for the OI community.  The ABLE Act will permit individuals with disabilities that have occurred prior to age to 26 to: 

  • Easily open a special ABLE savings account any state;
  • Deposit up to $14,000 annually under current gift-tax limitations;
  • Save as much as $100,000 in their newly created account without risking eligibility for Social Security or other government benefits;
  • Retain Medicaid coverage no matter how much money is deposited;
  • Earn tax-free income with tax-free withdrawals for qualified disability expenses.

 We are very pleased that the ABLE Act will be signed into law.

Read more about the ABLE Act HERE.


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 Osteogenesis Imperfecta Foundation

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