OIF E-News - April 2014
In this issue:
2014 OIF National Conference
From the Information Center
From the OI Foundation
2014 OIF National Conference, August 1-3 in Indianapolis, Indiana
The OIF National Conference
2014 is just around the corner! Attendees will enjoy three days in the great
city of Indianapolis, IN filled with informational sessions, medical
consultations, specific forums and fun. Conference registration and hotel
reservation information are now available at www.oif.org/conference.
Early bird registration ends on April 30, 2014.
Scholarship applications are due by April 11th
Earlybird registration ends
appointments available beginning May 1st
Deadline for the $149/night
hotel rate is July
Important Note About Hotel Reservations
The hotel is almost
sold-out of standard rooms on Thursday, July 31st. There are however 21
accessible rooms still available as of April 4. If you have not already, please
make your hotel reservation as soon as possible! If you have trouble making a
reservation, please contact Erika at email@example.com.
There are still plenty of rooms available on August 1st, 2nd, 3rd and 4th.
To make your reservation,
visit https://resweb.passkey.com/go/OIF2014 or
call 866-704-6162 and mention that you are with the “Osteogenesis Imperfecta
Foundation” National Conference.
Reserve your space now to
participate in one of the OIF Pre-Conference Forums! The OI Women’s Forum and the OI YEP (Young, Empowered, and Proud)
Youth & Young Adult Forum will be taking place on Friday,
August 1st before the Opening Session of National Conference begins.
Topics for the OI YEP Forum will include Claiming your Own Identity,
Living Independently and Relationships. There is no cost to attend the OI
YEP Forum and lunch will be on your own. Topics for the Women’s Forum
will include women’s health, pathways to parenthood, and creating a positive
self-image. There is a $45 fee to cover registration for the Women’s Forum, and
lunch is provided. Space is limited in both events, so register now! For
more details and registration information, visit www.oif.org/conference.
If you have questions, please email Bonelink@oif.org.
We will begin taking appointments
for National Conference medical consultations on May 1st. For
a complete list and directions on how to sign up, visit the Conference website
and click on the tab for medical consultations.
2014 Talent Show!
The Talent Show is back again
for the 2014 OIF National Conference in Indianapolis, IN. If you have a special
talent you would like to share, please sign up! Applications will be available
on the OIF website and will be shared through conference emails and Facebook.
You must sign-up in order to participate, and must be a conference-registered
attendee. There is no age limit. All acts should be no longer than two minutes.
The Talent Show will take place Friday, August 1 at 7pm, with a rehearsal prior
to the show. Please contact Susie Richard at firstname.lastname@example.org
if you have any questions.
Unbreakable Spirit® Walk-n-Wheel- Thursday, July 31st
kick-off our National Conference weekend, the OI community will come together
to participate in the National Unbreakable Spirit® Walk-n-Wheel! Beginning at
the JW Marriott, participants will walk or wheel one of Indianapolis’ most
beautiful landmarks, the Canal Walk of White River State Park. You can choose
between the 1k or 5k courses (or shorter!), both of which will end back at the
JW Marriott where we will celebrate all of our participants and supporters.
Walk or wheel individually; form a team with your family, friends or support
group members; volunteer; become a supporting sponsor; or show up to cheer on
the sidelines. Help us take Indianapolis by storm and make the Unbreakable
Spirit® of the OI community known! For more information or to set up your
personal team raiser page, visit www.oif.org/WalkAndWheelIndy or
contact Melissa Bonardi at email@example.com.
Please contact firstname.lastname@example.org with any questions
about the 2014 OIF National Conference. We look forward to seeing everyone
Happy Bone China Tea Week!
Bone China Tea 2014 is this
Wednesday, April 9, 2014! We are ecstatic to have so many dedicated online and
offline Bone China Tea hosts and supporters this year. Check
out some of the 2014 hosts’ online Bone
China Tea pages to support them in their fundraising efforts!
Don’t forget to donate the money you
save by participating in this virtual event from the comfort of your own home.
Wish you were more involved with Bone China Tea 2014? You can lead a Bone
China Tea at any point throughout the year! For more information, contact
Danielle at DCymber@oif.org.
We have one more month to
achieve our goal of reaching 100,000 people through social media before
Awareness Week. Since February 1st, our [SHAREforAWARENESS] posts have
reached OVER 77 THOUSAND PEOPLE! Keep up the "Sharing" and
Volunteers nationwide are
raising awareness for OI by planning Unbreakable® Spirit Walks and events to
take place during Awareness Week 2014:
Saturday, May 3
Sunday, May 4
Tuesday, May 6
Friday, May 9
Saturday, May 10
Spirit® Barbeque: Granger, IA
Benefit Ball: Greensboro,
Unbreakable Spirit® Walk for OI: Framingham, MA
for Better Bones: Orleans, MA
Blue Jeans for Better Bones Day: EVERYWHERE!
Annual Central Texas Walk-n-Roll: Round Rock, TX
Spirit® Walk: Uhrichsville,
Wear blue jeans to raise awareness during OI
Awareness Week in your school, office and/or community! Take part in the OI
Awareness Week National Blue Jeans for Better Bones Day on May 9, 2014.
Contact Danielle at DCymber@oif.org for a
Blue Jeans Leader Kit.
Hang National OI
Awareness Week posters!
Print the PDF posters from the Awareness
Week webpage to hang in your community. For full-sized posters,
contact Danielle at DCymber@oif.org.
Proclaim OI Awareness
Colorado, Connecticut, Illinois, Indiana, Missouri, New Mexico, Rochester, NY,
Washington, DC, and the House of Representatives have proclaimed May 3-10, 2014
as National OI Awareness Week 2014, has your state? To learn how to
submit a request, contact Jessica at JFinkel@oif.org
New item! Want to help raise awareness for OI?
Need items for an event or fundraiser? Check out the OIF
online store for some new OIF Merchandise! One of our newest items is
the OIF Unbreakable
Spirit® Keychain (pictured)
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From the Information Center
Getting in Shape for
Summer and for the 2014 OIF National Conference!
Spring has finally sprung!
Are you thinking about getting back in shape for the summer? Well, it is also
great timing to get in shape for the 2014 OIF National Conference and
Walk-N-Wheel! Here are a few suggestions to start planning for and living
a healthier lifestyle this spring and summer:
to your doctor if you want to try a totally new activity.
ahead for summer time safety, especially getting in and out of swimming
to your body. Start slow and don’t rush or overdo it. If you are a
wheelchair user or spend most of the time sitting, watch the Hospital for
Special Surgery’s video on Wheelchair Based Exercises for People with OI (http://www.hss.edu/conditions_wheelchair-based-exercises-osteogenesis-imperfecta.asp).
OI Bone & Health
Drinking Cola- Beware!
According to the latest
research, drinking more than one cola- diet or regular- a day can have a
negative impact on bone tissue. The problem with cola is the phosphate
levels, not the carbonation, like some may think. Club soda, seltzer, and
sparkling water are perfectly fine alternatives.
Staying Comfortable in
The American Academy of
Family Physicians suggests the following ways to stay comfortable while wearing
up the injured limb (if applicable) so it is above the level of your
you rest, wiggle your toes or fingers.
ease the pain, ice the injury for up to 30 minutes. Make sure the
ice doesn’t get the cast wet or actually touch the skin.
with your doctor if you think you need pain medication
Clothing and Shoes
The following survey
out of the University of Missouri was brought to our attention. We’re
told that it takes about 30 minutes to complete the survey. Adults who have a
physical disability, parents of children with a physical disability or
caregivers are eligible to participate. Here’s the announcement:
Participants Needed for study: Apparel-Related Barriers to Participation
you living with a disability, or a parent/caregiver of someone living with a
disability? Do you have trouble finding suitable clothing or shoes? Please tell
us all about it through this online survey: https://qtrial.qualtrics.com/SE/?SID=SV_cSExuKMZttQ9mE5
contact Dr. Kabel the study coordinator if you need more information: email@example.com.
Participants will be compensated for their time with a
$10 gift card.
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From the OI Foundation
Nominations for the
2014 Volunteer of the Year Awards!
Know a volunteer from the OI
community that deserves to be recognized for all of his or her hard work?
Nominate them for the OI Foundation’s 2014 Volunteer of the Year award. We are
so thankful for all of our volunteers and participants who provide support in helping
improve the lives of those living with OI. The Foundation recognizes these
great volunteers by presenting three awards to recognize outstanding
contributions to the community- a dedicated service award, a youth award and a
volunteer of the year award. The person named volunteer of the year will be
recognized at the 2014 National Conference.
here for the 2014 Volunteer of the Year Nomination form. Please submit your
entries to Jessica Finkel at firstname.lastname@example.org
by April 28.
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Osteogenesis Imperfecta Foundation
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