Did you see the Extreme Makeover: Home Edition episode about Jake?
The Grys family was selected for the show after three years of petitioning the show's producers and support that came from the many people familiar with Jake and the work of his adoptive parents, Steve and Jeannie. The show features their new 4,000-square-foot, seven-bedroom house designed to ensure access and independence for Jake. The program airs for the first time on Sunday, January 11, 2009.
Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” The term literally means “bone that is imperfectly made from the beginning of life.” A person is born with this disorder and is affected throughout his or her life time.
OI varies in severity from a form that causes early death to a milder form with few visible symptoms. Treatments focus on minimizing broken bones and maximizing mobility and general health.
Despite the many challenges of managing OI, most adult and children who have OI lead productive lives. They attend school, make friends, have careers, raise families and participate in community activities.
For a summary of information about OI see Facts about OI.
For information about home improvements to accommodate the needs of a person with OI see Home Modifications.