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ADOPTION


Resources

Website for the National Adoption Center - Includes helpful information about the adoption process.

The Department of Health & Human Services Administration for Children and Families sponsors this website. It provides information about children who are available for adoption anywhere in the United States.

Adopt Now website Besides providing general information about the adoption process, this one has useful information about adopting a child with special medical needs.

Love Basket, Inc. is a private nonprofit adoption agency. The site offers up-to-date information about US and International adoptions.

 

Children with OI who are Reported to be available for Adoption:


All information in this section is provided by recognized state agencies. It is up to the prospective parents to contact the identified agency to learn more about any specific child. The OI Foundation is not an adoption agency, or an agent for any adoption agency. This information is provided as a service to those who may wish to adopt a child who has OI.


If you know of a child with OI who is available for adoption and who is not listed, contact Bonelink@oif.org




CHILD ABUSE


Preventing Accusations

Parents of infants and toddlers who have been diagnosed with OI can take steps to avoid being falsely accused of abusing their child.

  • Carry documentation of the diagnosis -- a letter from the child’s primary care physician or orthopedist that includes weekend and night-time contact information
  • Meet with the supervising physician of the emergency department at their local hospital
  • Plan ahead with their child’s orthopedist about how to handle fractures that occur at night, on weekends or over holidays when emergency rooms are often under staffed
 

OI or Child Abuse?

False accusations of child abuse may occur in families with children who have milder forms of OI and/or when OI has not previously been diagnosed. It is estimated that about 35% of children diagnosed with OI are born into families with no history of the condition. Symptoms that are typically observed in both child abuse and OI include:

  • Fractures in multiple stages of healing
  • Fractures that are more severe than expected from the explanation offered by the caregiver

The OI Foundation can provide information about osteogenesis imperfecta, how it is inherited and how it is diagnosed. It cannot evaluate the merits of specific child abuse allegations. The OI Foundation recommends that when concerns arise about fractures seen in infants and young children that the possibility of underlying medical causes be fully explored.


For more information see the fact sheets:

Child Abuse or Osteogenesis Imperfecta

Child Abuse Issues

Diagnosis

 

 


 

FINANCIAL ASSISTANCE AND SCHOLARSHIP RESOURCES


Jeanie Coleman Impact Grant Program

Funded and administered by the Children’s Brittle Bone Foundation and the OI Foundation, the Jeanie Coleman Impact Grant program offers direct support to individuals and families by providing products or services that will greatly improve their quality of life. Items that have been awarded in the past include wheelchairs, orthotics, hearing aids, and modified vans. The application cycle opens every year in January and closes in February. If you have any questions about this program, please email impactgrants@oif.org.

 

Angel Flight arranges free air transportation for people who need to travel to receive lifesaving medical treatment, but lack the means.

www.angelflighteast.org

215-358-1900


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