Jamie Kendall Fund for OI Adult Health
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Jamie Kendall was a woman of unparalleled energy, passion, enthusiasm, kindness, compassion, and generosity.  

As President of the OI Foundation Board of Directors, Jamie set a high standard for leadership to improve the lives of people with OI. As a volunteer, she supported, counseled, and inspired countless people with OI and their loved ones. Beyond her family, friends and work on behalf of Americans with disabilities, Jamie was passionate about empowering the adult OI community in the areas of education, employment and their unique health concerns.  In all she did, Jamie encouraged adults with OI to push beyond themselves and plan for a healthy future. 

The Jamie Kendall Fund for OI Adult Health was created in her honor. The program, which is part of the OI Foundation’s Adult Health Initiative, will raise funds and awareness to improve the health and quality of life for adults living with OI.

The goal is to raise $250,000 in two years to fund a promising pulmonary study, provide training opportunities for medical professionals nationwide so that they are better educated on issues affecting adults with OI, and develop health management guidelines.

The Funding Need

The first two years of the Jamie Kendall Fund have been a wonderful success! With your help, we have raised more than $250,000 to fund the creation of the Take Charge of Your Health tool kit, educate medical professionals about OI and create a promising new cardiopulmonary study led by Dr. Cathleen Raggio at Hospital for Special Surgery in New York City.

In the next year, we hope to raise an additional $100,000 to continue this amazing work in Jamie's memory:

Expand the current cardiopulmonary study based off current findings.


Spread the information about the cardiopulmonary study results to members of the OI community across the country through regional conferences and publications.


Total Cost









Jamie Kendall Fund for OI Adult Health





75 percent of goal achieved.

Please help us continue Jamie's work by making a gift today.
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