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Peer-to-Peer Stories

Read or submit your stories and tips in the following categories:

PLEASE NOTE: The stories on this page have been submitted by OI Community members, and have not been reviewed or endorsed by the OI Foundation or members of the medical community. The OI Foundation strongly urges you to consult with a qualified expert before making any changes to your health care or exercise regimen.

Individual symptoms, situations and circumstances vary. Please consult your physician or health care provider regarding your condition, treatment or any specific questions regarding your care.

Since the symptoms of OI vary so greatly-- even within the same type or among members of the same family-- what works for one family or individual may not be appropriate for all persons with OI.

Thank you to the community members who have shared their stories!

 

 


Adults:

They All Thought I was a Klutz!

The story of growing up with OI while being actively involved in sports.

The Long Road

The challenges of raising a child with OI with other disabilities

Growing up as an Indian with OI

The challenges of having OI and an Indian heritage.

 

Parents of Teens:

Off to the 2006 Paralympics

Athlete's mom attibutes slow down of fractures to exercise, sled hockey competition


Parents of Kids:

Better off trying something

My experience with Pamidronate and rodding for my child

Married to OI

My husband and son have OI...

 

Teens:


Mild OI:

 

Moderate to Severe OI:


Miscellaneous:

 

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