Did you see the Bio TV program Three Foot Giant?

The program features Sean Stephenson a 30-year old man who has OI. Sean is a motivational speaker and has a psychotherapy practice in Chicago, IL. The show aired for the first time on Sunday November 15, 2009 on the Biography Channel.

Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” The term literally means “bone that is imperfectly made from the beginning of life.” A person is born with this disorder and is affected throughout his or her life time. Approximately 50,000 people and their families are affected by OI in the United States.

OI ranges from a mild form that causes fragile bones but few obvious symptoms to an extremely sever form that usually causes death shortly after birth. It is caused by an error or mutation on a gene. OI affects many parts of the body including bones, lungs, muscles, hearing, teeth and overall height. Treatments focus on minimizing broken bones, maximizing mobility and promoting general health.

Living well with OI requires expert medical care, a supportive family and accommodations in the person’s physical environment. Infancy and childhood are especially challenging times. The frequency of broken bones usually diminishes during the late teens and young adult years. Many children who have OI are excellent students. Adults pursue careers in many fields, raise families of their own, and participate in their communities.

The OI Foundation exists to help. Its volunteers and staff work to:

Show your support for people with OI and the work of the OI Foundation by purchasing an Unbreakable Spirit wristband.

For a summary of information about OI see Facts about OI.

People who have OI may have fragile bones but they face life with an Unbreakable Spirit!

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