EVENT INFO & DONATION PAGE
WHO: Lucas is a baby with Osteogenesis Imperfecta, a Brittle Bone Disease. He's on a mission to increase awareness, help fund research and improve treatment for those suffering from this rare disease.
WHAT: "Lemons for Lucas" is a series of fundraising events where groups can host LEMONADE STANDS to raise funds to be used towards OI research and treatment.
WHEN: Summer 2017 & beyond...
WHERE: ANYWHERE! Groups here in Atlanta, and across the country who are interested in participating can host their lemonade stand at the location of their choice. We encourage you to find a safe, high-traffic area where you have permission to set up & raise funds.
Step 1 - form a team. Get a group of friends, family, coworkers, teammates together who are interested in supporting this mission.
Step 2 - pick a date & location. Find a safe, high-traffic area where you have permission to set up and raise funds.
Step 3 - contact us @ email@example.com to let us know you'll be participating. We will put your event on our participation list, and send you OI Awareness materials for your event.
Step 4 - get organized. Make a list of supplies and work together with your teammates to get organized. Suggestions: lemonade, lemonade stand, signs, baked goods, cups, ice, straws, napkins, etc.
Step 5 - advertise. Use social media, word of mouth, and signs to draw attention & traffic to your event.
Step 6 - host your event. Make sure to take pictures and HAVE FUN!
Step 7 - submit your donation here on this page. Donation receipts are available - email me at firstname.lastname@example.org to request a receipt.
THANK YOU!!! We truly appreciate your time, consideration and generosity!
About OI (Osteogenesis Imperfecta):
50,000 people in the United States are affected by osteogenesis imperfecta (OI), a rare genetic disease that makes bones fragile and easily broken. A person living with OI may experience hundreds of painful fractures over a lifetime. Infants with OI are often born with multiple broken bones. In severe cases of OI, a cough can break an adult’s rib. Each person with OI is unique, with different fracture rates, a varied range of related health issues and his or her own path through life. Yet there is one thing every person living with OI has in common… an Unbreakable Spirit!
Lucas is a baby with Osteogenesis Imperfecta (OI), commonly known as Brittle Bone Disease: a rare genetic disease that makes bones fragile and easily broken. Infants with OI are often born with multiple broken bones. As life progresses, a person living with OI may experience hundreds of painful fractures over their lifetime. OI can also have severe effects on other vital body functions such as hearing, spinal health, and the cardiovascular and pulmonary systems. It is a lifelong disorder, but research is ongoing for new treatments and possibly even a cure.
Like Lucas, each person with OI is unique, experiencing varying levels of related health issues as they journey through life. While their bones may be fragile, the common thread among all those living with OI is an unbreakable spirit! That’s why Lucas, and the OI Foundation, are on a mission to increase awareness and fund research to improve treatment for those suffering from this rare disorder.
Although Osteogenesis Imperfecta literally translates to “imperfect bone formation”, our friends with OI are living with strength and courage as they overcome the difficulties of this disorder.