Progress : 72 of 200 Laps Completed!
Help me to help others!
I have pledged to swim 200 laps as a part of the OI Foundation's 50,000 Laps - One Unbreakable Spirit Challenge, and I need your support!
Approximately 50,000 people in the United States (far less in Canada) are affected by osteogenesis imperfecta (OI), a rare genetic disease that makes bones fragile and easily broken. OI is actually a connective tissue disorder that can affect all tissue of the body. A person living with OI may experience hundreds of painful fractures over a lifetime. Infants with OI are often born with multiple broken bones. In severe cases of OI, a cough can break an adult’s rib. Each person with OI is unique, with different fracture rates, a varied range of related health issues, and his or her own path through life. Yet there is one thing every person living with OI has in common… an Unbreakable Spirit®!
Some of you may have noticed and/or are wondering why I registered into a fundraiser for an American foundation. The OI Foundation is the largest for OI worldwide, and one of the only resource for Canadians affected by osteogenesis imperfecta. I have been directly affected by OI, as well as many members of my family, and continue to experience the effects of the disorder and how it impacts many people's daily lives, including my own.
Many patients with OI get misdiagnosed and even those who receive a proper diagnosis are unable to find treatment. The reason for this? A lack of awareness and research, especially funded research. I'll try to help put this reality into perspective. There are many diseases/disorders that need support, so why choose OI? In Canada there is ONE medical facility, the Shriners Hospital for Children in Montreal QC, that treats patients with OI; hence for children! This is great that we have them as a resource for children, but what then?? Every adult (over the age of 18) can not receive treatment there, even if they have been treated since birth. They are forced to seek medical attention elsewhere. What is the problem with this? there are no other doctors in the country that treat OI, and most are not knowledgeable about the disorder; they've "heard of it". The OI Foundation is our only resource!
Please help us to provide answers to families, fund research, and maintain a network of support groups for families dealing with the daily realities of OI by making a gift and even joining us for this fun event.
You can improve lives! To support the important work of the OI Foundation, simply click on the Donate Now button on this page. Every bit counts!
I also ask that you spread the word and help us generate buzz for this event that will make a difference?
I truly appreciate your time, consideration and generosity!