Four years ago, I joined the board of the Osteogenesis Imperfecta Foundation. At the time, most of you didn't even know I had OI, or what's more commonly known as "brittle bone disease."
That’s because I’m one of the incredibly fortunate when it comes to this rare genetic disease. With about a dozen fractures in my life-- including three femur breaks (maybe four and I didn't even know it)-- my type of OI, is one of the mildest. That's right, more than a dozen break, including the biggest bone in the body, is considered "very mild."
But that’s not the case most of the more than 50,000 adults and children affected by OI. Think about breaking a rib when you sneeze. Imagine breaking your baby’s arm just trying to slip a T-shirt over their head. That’s everyday life for most folks with OI.
Right now, there is no cure and in many cases, OI is life threatening. The OI foundation is the world’s leader in the search for a cure, and thanks to folks like you who supported the first annual Walk’n’Wheel with me in 2014, research is light years ahead of where it was just a few years ago.
Treatments are expanding, there are ground-breaking drugs to improve quality of life for those affected and we’ve built an extensive network of linked clinical research centers to help patients, friends and family. But there’s still so much to be done.
My quest continues to help the OI community during the Walk’n’Wheel on July 12th in Baltimore. Every dollar raised, every donor and every step taken brings us closer.
To support the OI Foundation, click “Donate Now.” If you’d prefer to mail a check directly, please make it payable to the OI Foundation and mail to:
2140 E Southlake Blvd
Southlake TX 76092
Every cent counts. So thank you in advance from the bottom of my heart. I truly appreciate your time and your generosity.